Organ Offer Process Survey |
Infectious Diseases (ID) clinicians who care for solid organ transplant patients are often involved with helping to approve "organ offers." This is when a potential organ donor is identified and the search for a recipient begins. Frequently, limited data about the donor are available. The ID clinician may be asked about the risk of accepting an organ from a donor with a potential or diagnosed infection. For ID clinicians there are a lack of guidelines on which organs to accept for certain infections. In conversations with ID colleagues, we have learned that approaches to this process are very different, potentially leading to a lack of use of some organs that may be acceptable for transplant. We would like to survey ID Clinicians who are involved in the process of organ offers to determine the variability in approaches to organ offers. We have developed a set of 10 case scenarios that are followed by a series of questions. These scenarios are not real patients and do not contain actual patient information. All information is fictional and put together to illustrate the type of questions that occur in the organ offer process. As is common for organ offers, limited information in the case scenarios may be available when decisions of organ acceptance are made.
Before we begin the survey, we ask that you please read through the information below, which provides further details on this survey and what your participation entails.
PROCEDURES: You have been asked to take the survey because you are an ID clinician who may be involved in the process of organ offers. If you agree to participate, you will complete the survey that follows. The survey will include 10 organ offer case scenarios that are followed by a series of questions about organ acceptance and post-transplant care. Demographic information that will be collected as part of the survey includes the continent on which you practice, which will be reported in aggregate form. No personal identifiers will be collected.
RISKS/DISCOMFORTS: You may get tired, bored, or feel stressed when we are asking you questions, or you are completing the survey. Please skip any question you do not wish to answer.
BENEFITS: There is no direct benefit to you from taking the survey. However, if you participate in the survey, you may help identify areas in which organ offer process responses vary and more evidence-based decisions are needed. The results of this survey may be used to inform ID clinicians worldwide who care for transplant patients.
VOLUNTARY PARTICIPATION: The survey is voluntary and anonymous. You do not have to agree to take the survey. If you do not take the survey, you will not be affected. You may stop answering questions at any time and your responses will not be recorded. Please skip any question that makes you uncomfortable, or that you think could be used to identify you.
IDENTIFIABLE INFORMATION IN FUTURE RESEARCH: This survey is anonymous. We will not be collecting any information that could be used to personally identify you or where you work. The responses to this survey will be presented in aggregate form and made available to other researchers upon request. Any free response questions that might contain personally identifiable information will be removed from the data set before it is shared.
CONTACT INFORMATION: If you have any questions about this survey, please contact John W. Baddley, MD (jbaddley@ihv.umaryland.edu) or Katya Prakash (kprakash@ihv.umaryland.edu) via email.
Page 1 of 11